So Skylar was doing so good we got to come home yesterday. We had an echo before we left yesterday and everything looked pretty good. He still has an insignificant hole between his ventricles, but nothing to worry about. The surgeon said that sometimes it is impossible to get every leak. We go back for a check up in 3 weeks and then every year for a few years and then every 3 years for the rest of his life... just to make sure everything is still okay. Hopefully he will never have to go through this again. On another note, his pain is pretty well under control. He was having a bit more today so I called and got a lortab order just in case. He is also having nightmares and also had a night terror today. I can only imagine the horrible things that are going through his head when he sleeps. Poor baby. He had to sleep with mommy and daddy last night... His incisions look great and hopefully his scar will be minimal when he gets older. We are so proud of our strong little boy and are so grateful to still have him in our lives. The surgeons, cardiologists, nurse practitioners and nurses were so great up there. In fact, we had such a great experience that mom has decided to change her career path and go work up at Primary Children's Hospital, probably in the Pediatric intensive care... but we'll see. I love the great attitudes and the innocence of all the children up there. You don't get that very often with adults.
5 years ago